Once again, I am at home with my baby girl. We visited with the pediatric GI doctor on Tuesday and left there hopeful that Grace's symptoms would continue to improve with a change in her diet. We discussed all of her symptoms over the past two weeks, almost three weeks now, and the doctor felt like Grace's intestines were damaged from being sick during January and from the antibiotics she had to take. She thought the lining of her intestines just needed to heal. She gave us a specific diet to follow and thought this would improve what was going on. So we left there feeling better about everything. We had a good lunch at Applebee's in Little Rock and then headed home. Grace ate a really good lunch, something she really hasn't done in a while, ate a good dinner, and only had to go to the bathroom once, and that was right before bed. So the doctor said that would be improvement, especially since she was going over the weekend 12 to 15 times a day.
So off to school Grace went yesterday. Had a great day! Seemed more like herself, took her lunch, ate really good, had an appetitie when she got home, and ate good at supper last night. So I was really hopeful we were turning a corner and that the doctor in Little Rock was right, that with this diet her stomach/intestines would heal and she would be better.
Around 11 p.m. last night she woke up to go to the bathroom. Still thinking this was okay since she had not gone all day, I was not thinking anything was odd. But this continued ALL night long. She would wake up crying with her stomach and have to go use the bathroom. Between 11 p.m. and 6:00 a.m., she had to go 7 times and has continued all morning so far. This is the most pain she has been in so far. It is so hard to sit here and watch her grab at her stomach and not know what to do to help. I have called the doctor in Little Rock. She is doing procedures at the hospital today so they don't know what time I might hear from her. I have called our pediatrician and was told they have ran all the tests they know to run, wait for the LR doctor to call back and try some Tylenol for the stomach cramps! I don't know about you, but I didn't know Tylenol would help with stomach cramps. To say the least, I am not going to give her any Tylenol until I know something else. I am so frustrated right now and don't know what to do. I hate waiting around for the doctors to call back. I sometimes wonder if we took her to the ER if we could get some more answers. Maybe they would do something!!! I just want answers and no one right now can seem to give me any. I am trying to be patient but I have felt all along since this started almost three weeks ago, that something is just not right. I am praying that we will hear back from the doctor soon today!
5 days ago